去Jill的路上Andre第一次画了手。
We thought we lost our cat!
OMG. It was a stressful day. Our cat disappeared since noon. We looked around the house and our community for a lot of time. But no luck. We even printed and posted the flyer! Suddenly he jumped out from a cabinet in the evening. Phewwwwww……
差点以为丢了猫猫。外面轰隆修路,猫猫不见了,以为跑出去了,妈妈难过的哭。晚上吃饭的时候自己从橱柜里跑出。
小飞在123 Karen那里跳stepping bucket,哭哭。
Yaneli试图给他戴游泳眼镜,被哭哭摘。
Andre 在party kingdom 第一次挺明白的玩投影地毯游戏,踩老鼠,踩气球,踢足球进门(现场球迷欢呼让Andre很兴奋很自豪)。在大球池里游泳,跳水,这是以前很怕的东西。
还是不喜欢离猫猫很近。画画时猫猫会来捉画笔,Andre就爬走,画笔一动猫猫又来。猫猫还会爬到Andre椅子上拿Andre的叉子,舔Andre正在玩的ipad.
He really love the ball pit recently. He was scared of it before. His nerve system is getting mature. Right now he jumps into it, crashes into it, and swims in it. Enjoyed it a lot.
Also his sleeping is getting better! I mean really stable. 8.5-9.5 hours at night and 1-2 hour nap. Beautiful! This is another sign the nerve system is getting mature. Yay.
Tips on therapists shopping for autistic kids
I just put a little video about some experience we had on therapists shopping. Hope it can help other parents!
We did hiking today
Just a regular day today. We had OT and ST this morning. After his nap, we did hiking had dinner with a friend. After that Andre ran around on the street after the dinner, and went back home!
Hiking is very good for him. He started doing hiking about 6 or 7 months ago. I still remember he got some big gross motor improvement after the first few hikes. It was not easy for autistic kids to start the new activate as they will whine and try to escape. But hang on there, and it will pay back!
Andre did his 1st Karate Class Today!
This was Andre's 1st Karate class! He did so good today!
早上咪咪主动亲了Andre。Andre乐呵呵的。Adventure park里面1小时Andre问了3个"这是什么"。第一个是bean bag沙发,第二个忘了。第三个是干草。妈妈用干草把2个卡车连载一起。Andre和2个小男孩都呆了一会儿。还画了粉笔画,自己画了戒指,和妈妈画了哭哭蜘蛛。小飞不太怕呆在那个公园里了。
第一次上karate。一对一。一直whine。
小飞说: 妈妈画3个绿色的电线杆。
Went to Santa Monica Stepping on the Beach
We went to Santa Monica after his nap. Let him step on beach and get him more use to the crowd. Whined for sure, but he is getting better. We still used the “mixing little comfortable thing with new environment” strategy when he stepping on the sand. Kind of worked!
Touch (tactile system) is sooooo important! That’s the foundation of learning. The image below explained it. That’s why we need to spend a lot time and energy to let him get use to different textures.
Andre is getting better with the cat and sometimes likes to watch the little kitty.
晚上去santa Monica,一路跑哈哈哈,踩沙子还是叫,但是好多了。还能在湿沙滩上面用羽毛写个A。
First Time Had My Gym Mighty Mites Class
My Gym Mighty Mites第一次上到了第一个station.虽然注意力是散的,但是能坐着不乱跑了。
晚上吃饭咪咪坐小飞椅子2层,小飞的有铃铛的积木一响就抬头看小飞,眼睛亮晶晶的,小飞也歪头笑嘻嘻的看咪咪。
First time had My Gym Mighty Mites class for about 15 minutes. We just stayed on the sides and the teachers did all the job. Andre was OK! Whined here and there, but overall he managed it pretty well! Will try more in the future. It seems he is kind of ready for a little bit school.
He is the little one in orange shirt!
Andre blowing bubbles in the pool
This is his 16th swimming class. Yaneli practiced blowing bubbles, kicking and crawling with him.
Happy 4th of July!
Only one physical therapy session from 123 pediatric therapy today as other clinics are closed. We went to a water park after the PT session. The water gun worked great! It successfully distracted him and calmed him down. See how he interact with the mom and even looking at other kids. He did whine and asked to leave after this video, but we can tell he is much more comfortable, and on the way to get use to it.
After the nap, we went to Downtown LA for the 4th of July event. He was a little off and nervous but we had some fun!
There are some fans with water spay. Andre loved it! This is the best park for today’s event for him. lol. He was running around for 20 minutes! Lots of sensory input.
Most importantly, Andre saw firework for the first time! I mean really watched it for 20 minutes! He was calm and enjoyed it!
Still no pooping! Two days in a row
Andre is performing so well today!
今天状态超级好,很像nt,语言也好,在party kingdom也不太怕小朋友了,在爸爸的陪同下能勇敢的管小朋友要小红车玩(说my turn)。
中午游泳爸爸走近录像,小飞很自豪的扔小鱼跳水,眼神特别好。
超市玩具机器中了绿色棒棒糖,车上说:"蓝色棒棒糖没有,只有绿色棒棒糖"。好像是说过的非delayed echolalia的最长的句子! 今天还有几次试图说长句子,但是妈妈没听懂。
Andre is so sharp today! He is even like a neurotypical kid this afternoon! I don’t know why. It happened for a couple of times before.
Just for my own notes about what’s different today: 1) gave him the Probugs Kefir after his swimming class instead of giving him before the bed time. 2) He had little mushroom at lunch (he had some rashes on his thigh after the nap, we though probably because of the mushroom. We don’t give him mushroom usually). 3) He eat some dried citron daylily last night for the first time. I’m not sure if they are related or not. Just for my record.
No poop today.
Andre's 15th swimming class- Jumping into the pool
The swimming class is so good for him! Look at his eye contact and joint attention! Wow!
Andre's physical therapists
Andre got diagnosed with low muscle tone in March 2018 by Dr. Bauman in Casa Colina Hospital. However we could not get any Physical Therapy services when we were under the San Gabriel/Pomona Regional center. It’s always very hard to get PT service from the regional center, even you really need it!
Below are the ones we are using right now through our own insurance. We have three physical therapists from different clinics! They work in different ways but are all great and extremely helpful.
Karen with 123 Pediatric Therapy
Karen is a great PT. She is very experienced, patient, and knowledgeable. Andre is picky about working with therapist especially when Mom and I are not with him during the therapy. He liked working with Karen from the first time even without us in the room! She worked Andre on jumping, climbing, standing on one foot, etc. I noticed my son made very good progress every single time after the therapy. She is very considerate as well, as Andre has sleeping issue and sleep very little and woke up very early from time to time. We have to do last minute cancellation for many times. But Karen is always very considerate and never charged us any cancellation fee.
Kim with Physical Therapy Specialists
Kim is so good! She got 27 years experience and her focus is on sensory integration! It’t more like a OT’s job, but she is really great at it! If your kid has sensory issue, contact Kim!
Karen with Centra Pediatric Therapy
Karen is special. She has over 30 years experience. She has been working on Andre’s muscle alignment. It’s like a massage, but so helpful! Andre got drooling issue before. Our OT said it’s because of sensory issue, and our ST said it’s because of the weak muscle of the mouth. But non of the therapy worked. After we saw Karen for 3 times, the drooling was completely gone! Karen explained it because Andre’s head and neck position is not right. That caused the drooling. The muscle alignment got him much better body gesture!
2nd time played in a water park this year. He still didn't like it!
在Kim阿姨那里唱了好多歌,old MacDonald,rain rain go away(旋律),twinkle twinkle.
水公园刚开始还是唧唧歪歪,要吃汉堡想逃回车。妈妈给小飞灌滋水枪,小飞偶尔滋到妈妈,妈妈哇哇叫,小飞就来劲儿了,滋水枪追着妈妈滋。虽然自己没动窝,但是忘了怕水。水公园6点没水,小飞恋恋不舍。
Jump n Jammin 蹦床里不怕小朋友了,小朋友离近了会跳跳躲开,但是还会继续跳,偶尔才躲妈妈怀里。在隧道里还和妈妈说了小姐姐好。
小猫来我家后第一次打疫苗。回来就不吃不喝病泱泱的了。晚上活了一点点。
假装吃小猫食盆里的食,还用手或愣或愣猫水盆。
We went to a little water park called Carolyn Rosas County Park in Rowland Heights this afternoon. Getting some sensory thing for him! This was the second time we went to this park this year. Andre is still very afraid of it. He was good last year. Probably because he hasn't played in the water park for a while. He usually has some transition period when switches to new things, like from shorts to pants, socks to no socks. It will go away after keeping doing for a few times or a few days. It's getting hotter, so we will try to bring him to this place more.
We used the same trick when he doesn't feel comfortable with the new environment. We tried to use/find something he likes, that can distract him. We used water gun this time. But the water was closed at 6pm, right after he was getting a little more comfortable. We will use it again next time.
We went to Jump n Jammin in West Covina after the water park. He likes jumping in the trampoline a lot. He can jump 30 to 40 minutes straight. It can give him a lot of vestibular and proprioceptive input. We always bring him to a gym with a trampoline every 2 to 3 days and let him do a long time jumping, as we found this can calm his nerve system really well.
PT with Kim and ST with Amanda in the morning.
Pooped today!
小飞午觉醒来,闭着眼睛摸妈妈,突然睁眼看到摸的是猫,说 不要猫猫。猫猫自觉下床,去闻脏衣服了。
小飞在Jill屋里特别快分神,可能因为英文听着累,听懂的也少。
晚上睡觉让妈妈唱 雪花 (雪绒花)。好久以前唱的歌了。
Nothing special today. Our speech therapist Jill added another session on Sunday from 12:30pm to 1:30pm, which is great! Andre is always off at Jill’s session, I don’t know why. Mom said probably it’s 100% in English and his English is much weaker than his Mandarin Chinese, so he needs more energy to focus. It make sense to me. Hopefully it will be better.
We Went To the Lavender Festival Today!
小飞明显不太一惊一炸了,注意力和持久度也好了很多。
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咪咪1个月住家总结
咪咪来我家时2个月大,1天就熟悉了书房,会挠门或者喵喵叫想出去。水盆里水没了会用脚敲击引人注意,会爬人要关注要陪玩,爸爸工作时会好好的不打扰,会爬妈妈肩膀玩刘海咬刘海,和妈妈轮流玩你追我跑的游戏。会跑上一半楼梯,等爸爸来追再使劲跑。爸爸不让上钢琴,会故意跳到钢琴上,然后被自己踩出的音吓跑。会抱抱胳膊和腿要玩玩。会追小飞玩。
Sleeping was good last night!
We went to the Lavender Festival at 123 farm located in Cherry Valley this afternoon. Pretty far drive! Andre was kind off and tone was low at the festival. He liked us to hold him a lot. It’s very typical for him as there are not a lot of things he can do visual stimming. He like environment like downtown LA. Lot of lights and running cars things like that. But he managed it. He run a little bit in the lavender field, and Mom and I took some photos. We are trying really hard to expose him to different things, events and environment.
He tried lavender flavor ice cream today. He loved it!
We took the My Gym class and OT session with Grace in the morning.
Still giving him threonine. He was very calm during last two days. Looks like it’s working.
Pooped two days in a row. Yay!
Mom Went To The Urgent Care
妈妈去了urgent care,因为心跳快.胸闷气短,背疼很多症状。可能是焦虑和抑郁症。医生开了抗抑郁药。爸爸买了茶胺酸,给小飞试了一点。
Aww…. Andre woke up at 5am again this morning. His sleeping is really an issue which is totally not good for his development. I get him up let him did 400 times jumping and 15 times sit ups. Also gave him some snacks and warm milk and about 0.8mg melatonin. Put him back on bed again around 6:40. He fall asleep again on 8:50am and suddenly woke up again at 9:15. Jeees…We tried everything we know to let him sleep better, not still nothing worked. We are still trying. We though probably he has high anxiety level, but not sure.
OT session with Echo at Carrico Carrico Pediatric Therapy and PT with Courtney at 123 Pediatric Therapy in the morning, and then lunch, then swim class. He fell asleep for nap really fast after that, from 2:20pm to 5:35pm. Then woke him up, put him in the car for another PT session with Karen in Centra Pediatric Therapy.
Mom went to the urgent car because she felt short of breath and heart beat fast. The doctor prescribed her some anti pills for depression. She took it before bed time and it was working good. We also bought some Threonine. I checked the amazon review, and saw a lot of people gave it to their kids with ASD or ADHD, and got some great result. So I gave Andre very small dose. He looked more calm. We will try it for next few days see how it is going.
He pooped today! Good! We feel relief, lol.
在Grace的OT session主动问妈妈要什么颜色的积木。不错~
晚上睡觉上楼前主动去要给小鱼喂食。
Andre slept about 10.5 hours last night. He asked mom “what color (of the lego) you want” when he was in the OT’s session. Impressive! He was still whining a lot when Grace the OT let him jump on the stepping buckets. It’s been for a while. Grace told us before that this is because of him poor proprioception which make him afraid of height, even just a little height. Today we asked Kim the PT right after the OT’s session, and Kim said it’s not only because of the proprioception, as he should be able to adjust himself pretty quickly if it’s only because of that. There should be some physiological reason. That make sense to me. We are thinking about remove the stepping buckets part from Grace’s OT session for a while. Also we are planning to buy the stepping buckets, and let Karen the PT from 123 Pediatric therapy to practice on him. Because Andre works a lot better when in her clinic, for example, Andre will jump from a 20” height place comfortably for her, but won’t do this for us. We will see how it’s going.
He took the swim class today, but did not fall asleep for nap, even with 0.2mg melatonin. It seems he got very exited and the nerve system did not calm down for some reason.
Before he went up stairs for sleeping, he asked to feed the fishes! Its not the first time, he asked many times before, but still we are very happy to see this happening.
Still no pooping today, two days in a row.
Messed Up Sleeping
小飞昨天+晚上只睡了5个小时,早上被爸爸报下楼,和猫猫关一起关了1个小时,小飞变成了猫猫的大玩具。小飞爬着跑,猫猫追。小飞被猫猫霸凌了。
小飞说: 明天游泳,今天不游泳。(好像是第一次明确今天和明天)
小飞第一次给猫猫加食盆,猫猫来闻闻,小飞怕怕。
小飞对着猫猫口中念念有词,问他干什么呢,回答说singing...
得知今天不用游泳了,小飞精神特别好。去上语言课都乐的在屋子里转来转去。
晚上用粉笔第一次画了完整的火车!就是之前不好意思回答爸爸问是什么的(烟囱),原来是在不断练习中!
小飞把水池灌满水,然后在水池里吐泡泡。
小飞上楼睡觉前还确认了一下小猫在不在屋子里。
Andre messed up the sleeping last night. He only slept about 5 hours from 12:30am to 5:30am. After he got up, I put him in another room with the kitty, and push him to interact with kitty. He was still scared to be with the cat. He was keeping doing delayed echolalia. It seems this is a self protection way to calm his nerve system. I asked him what he was doing, and he answered me “singing“. It was really funny Andre was crawling and the cat was chasing after him. I let Andre refilled cat food in the bowl. I think this is very practical and can practice his fine motor skills as well. Good for him!
Since the schedule is messed up, we only brought him to the PT session in the morning and then let him take a 4 hours nap. He is really happy we missed the swimming class. He said “NO SWIM TODAY, SWIM TOMORROW“ Wow! This was the first time he is using today and tomorrow. Huge for him. It seems he was extremely relaxed and even running around in the room when he was doing the speech therapy in the afternoon.
We went to the Yorba Regional Park after the ST session. We love this park as it has a straight and long driving way that Andre can bike. After the biking he played at one of the playgrounds. He had a lot of physical activities today!
When he washed his hand before dinner, he put water in the sink and was blowing in the water. That was a practice from the swimming class!
He drawled a more complete train head in the garage in the evening for the first time. Finally I knew that was the half circle with two lines under it. It’s the chimney! In the recent couple of weeks he was keeping drawing that thing alone. When I asked what was that, he answered ‘half circle‘. He was practicing secretly. How interesting!
Before he went to bed he went to the kitty’s room to make sure the kitty is there. I feel he likes to have some kind of connections with the cat but just don’t know how. That’s social part he is missing.
No pooping today.